Monday, February 22, 2016

A-Z: Ables and Compliance

Jack started his fourth week of ABA therapy today, and the work has begun. The first two weeks were mainly spent getting him settled in and comfortable with his new surroundings and new "friends".  The therapist kept mentioning that they were working on ables and starting on compliance. Honestly, I really had no idea what she was talking about, but smiled and said "great". I thought compliance had something to do with billing and insurance, and getting all the paper work in "compliance".

Apparently, ables are exactly what you might guess, or not since it took me a minute. But ables are a long check list of tasks to see what Jack's abilities really are, studying him and seeing where he truly is in his development. Because let's be honest, the initial evaluation, where they spent 5 hours with him is not an accurate portrait of Jack's true abilities. And compliance has nothing to do with paper work, it's getting Jack to comply with they're requests; such as sitting at the table for 5 minutes, or simply putting a ball in a bucket. Which of course made me laugh out loud, literally, my first thought was "good luck!"  During Friday's meeting, they explained to me that Jack's behavior is what will be the biggest challenge, when it comes to getting him to comply. Really? That's so weird he's an angel at home and does everything I request of him! But seriously, Jack does what Jack wants to do when he wants to do it, so if you try and make him do something he's not willing to do, look out, literally, duck, bob and weave, cause it's all coming at you like a tornado, toys, hands, feet and most definitely a running start headbutt. The good news however is that those moments seem to be getting better, for example, getting him dressed and out the door in the mornings have become less stressful, he loves going to school. That in and of itself is a huge leap forward in progress.

What I do love about the program is they keep track of everything, what words he uses, how many requests he makes, and how long he has a tantrum for.  In the third week, when they really started pushing him, his tantrums or "non-compliance" lasted roughly 3 minutes, but by the end of the week he was averaging a minute and a half, which is awesome. This last month actually has been pretty amazing, Jack seems happier and the tantrums at home seem to be less of a meltdown mode and more normal toddler upsets. Seeing progress this quickly has been a delightful surprise. We still have a long road ahead of us, his lack of impulse control is still a force to be reckoned with, however we have just learned to keep the counters and tables clear, and have kept the time outs consistent.  Even the spitting out of water and juice wherever he stands has almost completely stopped. I feel like there might be a small light down at the end of that tunnel now, where before I felt like I was in the dark, not knowing what the future holds for our little man. Jack is so smart and such a quick learner, I can't wait for to see where we are even in the next couple of months, ABA therapy has truly been a blessing.

Hugs from a fellow Momma Warrior
Em 

Saturday, February 20, 2016

Medication...The struggle is over!

Since the beginning of Jackson's little life, we have struggled giving him medication. He is so sensitive to taste, that even the slightest hint of it and he's spitting it out. As an infant and even now at 2 1/2, if I manage to get it down him via syringe, with in a minute or less he's vomiting. It's a nightmare. This past weekend Jack had a fever and it was climbing rapidly, he refused to drink anything I gave him with Tylenol in it, coupled with increased heart rate and rapid breathing, needless to say we ended up in the emergency room. Once again, they wanted to give him oral Tylenol, after explaining to the nurse that, that was why we here in the first place, she suggested a suppository form of Tylenol. How did I not know about this? Even the woman at the pharmacy said she'd never heard of it before. And later this week it was discovered that Jack had an ear infection, the reason for the fever. So of course the doctor wanted to prescribe an antibiotic, twice a day for ten days. I almost started crying, I told her about our struggle. After two years and two pediatricians later, our current Doctor said "I could give him a shot, although I hate to interfere with the progress we have made when he comes here!"  Wait...What? There is a shot? All this time, all the screaming, kicking, spitting and tons of vomit later, there is a shot? After my irritation settled down, I could not believe I had not thought of it sooner. Of course we'll take the shot, one and done or ten days of hell...hmmm?  

Today on one of my support groups on Facebook, a mother posted about her struggle with medications and the horrific ordeal that comes with it, and it occurred to me, I am not alone. So I thought I would share this new found information that doctors have apparently failed to tell many of us. Whether your child is "normal" or autistic, the struggle is real for all parents, these two alternatives have been a life saver for us! 

Hugs from a fellow Momma Warrior
Em 

Tuesday, February 2, 2016

Day One: Applied Behavior Analysis Therapy

Yesterday was Jack's first day of therapy. He will start out at three days a week for 3hrs/day. We call it school, but it's not even remotely like school. Jack has three wonderful young ladies who will be apart of his team. Today, we met Whitney and Andrea. I think Jack fell in love with Whitney right away, because after his 6 minute warm up period he gave her a hug, called her momma and asked her to go with him! I lingered for about 30 minutes to make sure he was adjusted, or should I say until I was adjusted! Then quietly slipped away and left my baby boy with complete strangers for the first time in his life. Then the strangest thing happened, I got in my car goggled the closest Starbucks and Target and was on my way! No sobbing, no heart strings being pulled, "that's weird" I thought, "Am I a bad mother because I am so OK with what just happened?" Nope, no I'm not, because I know he is in amazing hands and the therapy he is starting is going to bring great changes for Jack, and for my husband and I. He did great, and only had one melt down during a diaper change. When he came running out the door and saw me, his big smile melted my heart and of course the way he yells momma at first site of me and runs toward me, arms open ready for a hug is priceless. I asked him if he had fun and he replied "so fun"! So day one was a good day! I know the challenges of this transition are still in front of us, and this week is causal play and easy going so he can bond with his team, the real work begins next week, when actual therapy gets underway!

Applied Behavioral Analysis therapy "focuses on the principles that explain how learning takes place. Positive reinforcement is one such principle. When a behavior is followed by some sort of reward, the behavior is more likely to be repeated. Through decades of research, the field of behavior analysis has developed many techniques for increasing useful behaviors and reducing those that may cause harm or interfere with learning." (Autism Speaks, see ref. article below) From what I can gather a form of the therapy in action, for example, is they take a simple task and break it down into steps and they work on getting Jack to follow each step with positive reinforcement, adding each step one by one until the task is complete, sounds easy enough!? Well for Jack getting him to focus on one step or following directions can often be a challenge, unless of course it's something he is interested in doing. If he's "busy" forget it. As time goes on task and steps become more difficult as he learns how to perform them. And I am sure there is so much more to it, but like Jack I will learn more as we go. I have come across so many people that have nothing but amazing things to say about ABA, like how quickly they're child started to progress, how much it changed they're lives for the better and how some children similar to Jack did so well they graduated from ABA after six months and headed off to preschool or kindergarten! So I am absolutely positive we have been in the right place at the right time and catching his autism early enough, that he too will make great strides! The future looks bright now if only I could find my shades!


 Hugs from a fellow Momma Warrior
 Em

Applied Behavioral Analysis Therapy